Down Syndrome Foundation Nigeria Wins International Award on World Down Syndrome Day.

March 21, 2011 by dsanigeria
Filed under News & Events, Press Releases, featured

PRESS RELEASE : World Down Syndrome day March 2011

March 9, 2011 by admin
Filed under News & Events, Press Releases, featured

Down Syndrome Foundation Nigeria Awareness Week 2010 begins 29th September – 10th October

September 8, 2010 by dsanigeria
Filed under News & Events, Press Releases

We wish to formally invite your organization and request for your sponsorship/partnership of the Awareness Week-2010,” which commences from Wednesday 29th September through October 10th 2010.

The Awareness Week is part of a global event supported by all Down syndrome groups worldwide. We at Down Syndrome Foundation Nigeria (DSFN), use this period to focus our efforts in Advocacy, Awareness and Fund raising.

The theme for this year’s programme is “Just one chromosome…Give me a chance.”

The key events of the week are…

The Charity Walk	An 8km charity walk to keep fit whilst raising funds and awareness ( around Surulere	8.30am – 10.30am : Saturday, October 2, 2010	From DSFN Resource Centre at 43 Adegoke Street, through Itire and the surrounding areas
Down Syndrome Seminar	An international seminar to discuss educational, medical and socio-economic issues of down Syndrome in Nigeria.	10.00am-1.00p.m: Tuesday, 5^th October 2010	Grange School, Harold Shodipo Crescent, GRA Ikeja, Lagos
Fund raising Dinner & Awards	High profile dinner and awards evening with up to 200 guests	6.30pm – 9.30pm Thursday, 7^th October 2010	Golden Gate Restaurant, Kingsway Road, Ikoyi.
Family Fun-Fair & Exhibition	Family oriented – fun day with novelty charity 5–aside competition between corporate/group teams and ample children activities on offer	1.00pm – 5.30pm Sunday 10^th October 2010	Union Bank Sports Complex 41, Bode Thomas Street, Surulere, Lagos

Our aim is to raise as much funds as possible towards the target of N25m (Twenty-five million Naira), which would commence the development of a properly equipped educational establishment resource centre, provide transport and working capital. We also need to urgently raise N10m (Ten million Naira) for the next set of 8 remaining children and babies who require life saving heart and eye surgery in India.

Your specific support/sponsorship is required in the following areas…

* Sponsoring/Branding Tee Shirts and Fez caps for the charity walk on Saturday, October 2, 2010
* Branding the Seminar materials and venue scheduled for Tuesday, October 5, 2010
* Paying for several tables for the fund raising dinner and awards evening on Thursday, October 7, 2010 (a table of 10 costs N140,000 –individual tickets costs N15,000 each)
* Further sponsorship details are hereby attached

As this is the first year as a Foundation, partnering with an eminent corporate organization like yours, we are confident that this year’s edition will be the most successful ever.

Mrs Rose Mordi

National President.

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Why the Down Syndrome Foundation is Being Launched

May 24, 2010 by data
Filed under Press Releases

48 Comments

The Down Syndrome Association of Nigeria (DSAN) which has been the pioneer charity that takes care of people with Down Syndrome having been functioning since 2001 when it was established had to metamorphose to a Foundation in order to deal with the growing needs and challenges the association had been faced with over the years.

DSAN started out as a family support group whereby parents with children with DS came together to share their experiences and challenges encountered in bringing up their DS children which came in the form of family accusations and awful religious and traditional beliefs; stigmatization, health challenges the children exhibit and and also the need to know the best way of training them up to live a normal life.

Mrs. Rose Mordi, the founder and National President of the association, having gotten several trainings in the UK on trainingchildren with special needs coordinated these sessions but was soon saw the need to upgrade the family support group to an association.

As an association, DSAN had the objectives of taking the families with DS children through trainings on the importance of administering early intervention methods which helps in basically teaching the children to live independent lives as well as administer early education just as in bringing up normal children.

With the resource centre located at 109 Ogunlana Drive, the response of families with DS children became overwhelming that the association had to register with the Ministry of Education to have permission to run educational programmes for the children as well.

Along the line, the health challenges posed by some of the children who had heart defects, the association, in collaboration with the Kanu Heart Foundation (KHF) sent the first child to India for corrective heart surgery in 2004. After the successful surgery, the next set of DS children with heart defects arrived and before all the protocols could be done, two of the babies passed away. The deaths raised a serious challenge for the association.

The Resource centre at Ogunlana Drive kept increasing with more pupils and students that the two room apartment could not longer serve the number of students registered with the association; about 56 children were registered at that time but due to the space constraint, most of them who their parents wanted to stay in a boarding arrangement had to withdraw their wards though many of them were from indigent families.

In 2007, the Save a Life Project was re-launched when a 14 month old baby, Andrew Duku, came all the way from Bayelsa State to seek medical intervention as he was diagnosed with a hole in the heart. The association took the responsibility and raised the funds needs for the corrective heart surgery and Baby Andrew left the shores of the country in March 2008 and had a successful heart surgery at the Narayan Hrudayalaya Institute of Cardiac Sciences in Bangalore, India.

Baby Andrew’s success story became a catalyst that within a short time, Baby Victoria and Baby Josephine came calling. No sooner had DSAN arranged for their surgeries that for the first time, five babies came in for medical intervention. At this time, it was becoming almost herculean for the association to be functioning as a resource place where families come for advice and training on taking care of their DS children and wards and also delivering medical intervention.

Though there were corporate organisations that were partners with the association, the bulk of fund meant for the running of the association were used to give these children with heart defects a new lease on life. Also, the increase registered in the enrollment in the educational facility also needed attention.

It was then obvious that the association needed to move to the next level. Series of consultations were embarked upon with partners both within and outside the country and advice sought from other DS organisations that the association were affiliated to all over the world and the need of upgrading into a foundation was inevitable.

While these reasons mentioned were being looked at, the efforts of the association to establish resource centres in the six geo-political zones in Nigeria also came up; the association had successful established DS resource centres in Calabar in Cross River State; Abuja and was making efforts to start one in Kaduna but the resources needed to establish these centres were limited. The aim of establishing centres across the country became necessary when so may inquiries were been made from places far away from Lagos and also the increasing cases of DS children been born in Nigeria. Being the only charity that takes care specifically of people with DS, the challenge was enormous.

Another problem that faced the association was getting the students in the association who have passed through the educational institution to live a real independent life; it became necessary because so many of them had been with the association for years and the question of , “After here, what next?” arose.

The Planning Committee then approved the proposal to upgrade the association into a Foundation to firstly;

1. Run the Association effectively

2. Raise the Awareness of DS by establishing more resource and information centres

3. Deliver appropriate medical interventions

4. Provide adequate educational facilty for the children and people with DS

5. Make it possible for those that have passed through the educational institution to live an independent live after passing out.

The Down Syndrome Foundation Nigeria was therefore registered and have personalities like Chief Segun Olusola, Mr. Reuben Abati, Mr. Felix Awogu, Mr. Sonni Irabor, Dr. Tony Rapu, Mr. N.G Patel, and so on as members of the board of trustees.

Come 27th May 2010, the Foundation will be launched by Her, Excellency, Mrs. Abimbola Fashola, the First Lady of Lagos Statewho will also commission the new resource centre that can now boast of specialized equipments, boarding facilities and vocational training for the children in order to make them more useful to the society and lend their hand in the desired change the county needs.

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Down Syndrome Foundation Nigeria – Invitation to the commissioning of our new resource c

May 24, 2010 by data
Filed under News & Events, Press Releases

132 Comments

The Down Syndrome Association of Nigeria is pleased to announce that, with the help and support of long standing supporters like your good self, the Down Syndrome Foundation Nigeria is set to be launched and the new resource centre commissioned.

For this, we believe it is only fit and proper to humbly request your esteemed presence to grace this most special occasion as our Special guest for the event.

We will also use the opportunity to unveil our new logo as we take on the status of a registered foundation, with recognized Trustees who are respectable model citizens of the society.

The event has been scheduled for Thursday 27th May 2010, a special date which has been earmarked as “Children’s Day” globally.

The event is scheduled to start for 10.30 a.m and should last for a maximum of 1 hour 30 mins.

The venue will be at our new centre located at 43 Adegoke Street, off Alhaji Masha Street , Surulere Lagos.

We look forward to a positive response which would be a massive boost to the children, staff and Trustees of the Down syndrome Foundation , Nigeria .

Please find attached an invitation for you.

Thank you for your continued compassion and support.

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DSAN Celebrates World Down Syndrome Day

March 30, 2010 by data
Filed under News & Events, Press Releases

74 Comments

The Down Syndrome Association of Nigeria (DSAN), a registered charity and the only organization established within the country and the West African sub-region to cater for people with Down Syndrome, announces the World Down Syndrome Day which comes up on March 21st 2010 will be celebrated in Nigeria just as it is being held all over the world.

World Down Syndrome Day (WDSD) is usually celebrated on 21 March with Down syndrome organizations throughout the world organizing and participating in events to raise public awareness of Down syndrome.

The date which was selected by Down Syndrome International (DSI) to signify the uniqueness of Down syndrome in the triplication (Trisomy) of the 21st chromosome and is used synonymously with Down syndrome.

According to the National President of the Association’, Mrs. Rose Mordi, special activities has been lined up for the day and this will be flagged off by a special thanksgiving ceremony at Redeemed Christian Church of God (Jubilee Christian Centre, 15 William Street, Aguda, Surulere,Lagos) after which an awareness rally will commence from the Down Syndrome Association of Nigeria Headquarters situated at 43 Adegoke Street, Surulere, Lagos State.

The Awareness rally will proceed to the Lagos State Government House where the wife of the State Governor of Lagos State, Her Excellency, Mrs. Abimbola Fashola will host people with Down Syndrome to an evening of discussions and to create awareness of the condition in the country.

The association will also use the celebration to inform of the programs it plans to hold tentatively over the next few months in order to create awareness as well as advocate for people with Down Syndrome in Nigeria .

Some of the events include the commissioning of the Down Syndrome Foundation of Nigeria which will take place on the 27th of May 2010; a one day special musical concert that would feature notable artistes in the country billed for the 3rd of July 2010 while the Annual Down Syndrome Awareness Week will commence on the 2nd of October with a Charity Walk; A seminar on the 6th of October while the Awards Dinner evening will take place on the 8th of October 2010. The Annual Family Funfair which brings families, friends and partners of people with DS is expected to be held on the 9th of October 2010.

Also, there would be introduction of so many others events our PR firm, Meljenstin Public Relations and events Consultants will come up with this year.

The National President wishes to inform our numerous partners and support groups that through their support, the association has been able to relocate from the former resource centre located at 109 Ogunlana Drive , Surulere to 43 Adegoke Street also in the same vicinity, where renovation works is still going on. The association wishes to use this opportunity to appeal to corporate organizations, religious bodies and individuals to project.

The association also wishes to inform the general public especially those with DS children of the introduction of boarding facilities in the educational centre operated by the association and urges families to enlist their children or wards to be adequately taken care of by the specialized staff at the centre.

The association would also like to announce that it would be honoured in the Special Recognition Category of the National Daily Awards as the best Non Governmental Organization for the year 2009 by the National Daily Newspapers. In a letter dated March 8, 2010, the Managing Director and Editor-In-Chief of the National Daily Newspaper, Mr. Sylvester Egbodaghe noted that the association was being honoured for their “unquantifiable contributions towards those whom ordinarily members of the society would not want to have anything to do with.”“You stuck out your neck and embraced the unembraceable, showing them love and extra ordinary care in the midst of a selfish and careless world. You gave hope by giving off your own humanity,” the letter read.

The Award ceremony would hold 26th of March, 2010 at the Lagoon Restaurant, Victoria Island, Lagos and is to be chaired by the former Secretary-General of the Commonwealth, Chief Emeka Anyaoku while Prof Jerry Gana, former Minister of Information is expected to give a keynote lecture.

The association wishes to dedicate the award to all its partners.

Visit our website at www.dsanigeria.org for more information or call our Media and Publicity Department on 080-3748-7286: Email: ahaoma@dsanigeria.org

About The Down Syndrome Association of Nigeria

Who are we?

Down syndrome Association of Nigeria is a non-governmental, not-for-profit association of children with Down syndrome as well as their parents, caregivers, and other interested stakeholders.

History

Down syndrome association of Nigeria was formed (founded) on 4th of December, 2001 by a parent of a child with Down syndrome. Societal attitude toward parents of people with Down syndrome is totally negative in the Nigerian society. Society defines them by what they do not have rather than what they have; what they cannot do rather than what they can do; they are relegated, denigrated and stigmatised on the basis of some retrogressive myth and tradition They are abused physically and sexually with impunity and in extreme cases; even their right to life itself is denied them.

It is against this rather harrowing and ugly backdrop that Down Syndrome Association of Nigeria evolved with a vowed commitment to bridge the gap between children/adults with Down syndrome and the rest of the society through a support system that seeks ultimately to integrate them. This commitment is rooted in the firm belief that if given the necessary encouragement and enabling environment to grow like others, people with

Down syndrome can and do actualise their potentials and live a fulfilled life. In a vast country like Nigeria , as well as in the entire West African coast, with a combined population of well over 230 million, we are the known non-governmental organization working to provide leadership in all areas of concern as it relates to persons with Down syndrome. It should be noted that charity/volunteer work in our part of the world could be most challenging and frustrating, especially as there is very insignificant, if any, support (both morally/financially) from the Government and corporate concern

Mission Statement

Vision – Our vision is a world where all young people with Down syndrome are offered the opportunities that they need to achieve their individual potential. Mission – Our mission is to improve the opportunities offered to young people with Down syndrome. We do this by discovering their potential and by identifying how to support their personal development most effectively through scientific research. We then communicate evidence-based information and guidance through publishing, training and consultancy services to families and professionals worldwide. Through scientific research and global communication, we transform the lives of people with Down syndrome everywhere.

Our services

Educational

We give special educational Early Intervention Programme (E.I.P). This is meant to cater for each child’s immediate and unique learning needs and facilitate the child’s developmental milestone. However, before this is done, an assessment test is carried out on the child to diagnose his/her intellectual deficits and medical problems. Our in-house Educational psychologist and medical Doctors in the Down syndrome Association secretariat do this assessment at 109, Ogunlana Drive Surulere, Lagos . As soon as these educational and medical assessments have been done, the child’s medical needs will be ascertained and the modalities for treatment and therapy will be made known to the parents/guardian. Similarly, the result of the educational assessment will reveal the child’s strengths and weakness, and an individualized curriculum Programme is planned for the child; this Programme is unique in the sense that, it is tailored specifically towards the learning needs of each child as all children are not equal, each has his/her own learning needs.

The educational Programme curriculum covers the following areas

1) Literacy Development (Reading & Writing skills)

2) Numeracy skills (Numbers and Calculation)

3) Communication & Language (Speech development)

4) Social Development

5) Vocational skills

6) Perceptive skills

Social Services

Relocation Programme for street boys and girls with Down syndrome

Enlightenment/Interactive services on Down syndrome through media/work shop/seminars

Help line Telephone service and House-to-House emergency respite, Sensitisation and Advocacy/Pressure group to the government, legal services and memoranda to government officials involved with health and educational Programmes at local, state and federal levels.

Regular enlightenment and interactive service on Down syndrome through the media (print and electronic), workshops/seminars.

Through the above mediums Down syndrome Association of Nigeria give information to people about the condition-Down syndrome and the best management strategies. Since Down’s syndrome and learning disabilities is a societal problem as a result of the negative stigma associated with it, we educate and de-stigmatise the society from such negativism.

Sensitisation and advocacy/pressure group to the government including legal services and memoranda to government. The association paid one of such visits to the national assembly (senate). It has also visited the 1st lady of the Lagos State government. Several letters and memoranda are sent on a daily basis to various corporate organization government organs and well meaning personality giving them awareness about this condition Down syndrome and the need why parents who have these children should bring them out for proper care and education.

We also give telephone help-line service and house-to-house emergency respite for people with Down syndrome.

Rehabilitation Services

This department functions under the educational Programme of the Down syndrome Association. The following services are offered:

Training centre and resettlement support for people with Down syndrome

Resource centre which includes Toys and educational library

Mainstreaming and integration school Programme for people with Down syndrome.

Counselling Services

Parents of children/wards with Down syndrome, as well as siblings need a lot of counselling. The Down Syndrome Association of Nigeria has a host of professional counsellors who offer counselling services.

The following lines are for counselling:

234-1-8119718,08032285545 or email counselling@dsanigeria.org.

Referral Services

Down syndrome Association of Nigeria officials and members of the Board of Trustees meet regularly to review the activities of the association.During these meetings, all other committees meet to review Programme of the Association and assess the success and challenges of the various Programmes undertaken by the association during the year.

Tags: Down Syndrome Association of Nigeria

A Blessing in Disguise! – Composed for David Akerele By Elsie Rose Akerele

March 30, 2010 by data
Filed under News & Events, Press Releases, featured

1 Comment

My Angel Has down Syndrome

Yes! His Birth, unusual; his growth, unique;

His make, different.

At first a challenge, and later a task,

And then a mission.

My Angel Has Down Syndrome

I needed the grace, he needed the love.

His siblings were aware of the work on ground.

Their input is beyond what money could buy.

They needed to extend their unconditional acceptance

To the new arrival in the home of ours.

My Angel Has Down Syndrome

I learnt to make him my angel, my friend,

My companion and my closest acquaintance.

And I got the shock I never bargained for.

The way my Angel responded to training,

He yielded to love,

He embraced my friendship,

He was encouraged to learn some skills,

He dances like bees and drums better than the drummer boy,

He sings like birds and his laugh infectious.

My Angel Has Down Syndrome

And soon, my Angel was noticed by all and sundry

He began to be loved by the neighbours and authorities

His gifts and skills have made room for him.

He stands before kings and acts before princes.

To the priests, he is just the friend they want.

My Angel is humorous and so compassionate.

Is that a gift or also a skill?

You should know where I’m coming from!

We became friends and the best for sure.

My Angel Has Down Syndrome

Wherever he goes, I’m always invited

If he sees the kings, I’m seen kings

If he is beamed in the media, I am always accomplished.

We compliment each other in our great assignment.

My Angel Has Down Syndrome

His credentials include story telling,

Children supervision and interceding for people.

David my Angel, the weak has been made strong,

The Fool has become wise, the poor has become rich.

And today this scripture is here fulfilled:

“That all things work together for good to them that love God

And are called according to his purpose.”

My Resolve

I’ll love the more to gain twice as much

My mission in life is right on course.

My Angel is the catalyst of who I am,

And a great aid to where I am.

With David, I have learnt my lessons aright,

And place my priorities right as well.

When I’m left with the weak,

The Lord supplies the strength I need.

When I stay with the fool,

The Lord remains my wisdom.

When my portion is with the despised,

Christ remains my lifter.

My Angel has brought me from obscurity to limelight,

A royalty I never bargained for.

I share fame and glory with him;

I enjoy privileges with him.

He is now one of the greatest treasures

I have found in life.

He’s given my life a meaning

The greatest things God has done for me.

Who is Your Angel?

Locate him and the Lord will turn your pains to gains.

My angel has DOWN SYNDROME ;

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Ayo Omotade visits DSAN

May 14, 2009 by admin
Filed under News & Events, Press Releases, featured

Baby Victoria Ajayi Undergoes Successful Corrective Heart Surgery

May 14, 2009 by admin
Filed under News & Events, Press Releases, featured

30 Comments

Baby Victoria and a surgeon

by Ahaoma Kanu

Some hours after more than one billion people worldwide witnessed the historic swearing in of the 44th and first African-American President of the United States of America (U.S.A), Barrack Obama, a group known as the Down Syndrome Association of Nigeria (DSAN) kept vigil at night offering prayers and supplication to the same God not for the new President who had ten balls to attend thousands of miles in Washington, they were spiritually clearing the way for one of their babies who left the shores of the country to have her defective heart corrected. Read more

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Down Syndrome Foundation Nigeria Wins International Award on World Down Syndrome Day.

PRESS RELEASE : World Down Syndrome day March 2011

Down Syndrome Foundation Nigeria Awareness Week 2010 begins 29th September – 10th October

Why the Down Syndrome Foundation is Being Launched

Down Syndrome Foundation Nigeria – Invitation to the commissioning of our new resource c

DSAN Celebrates World Down Syndrome Day

A Blessing in Disguise! – Composed for David Akerele By Elsie Rose Akerele

Ayo Omotade visits DSAN

Baby Victoria Ajayi Undergoes Successful Corrective Heart Surgery

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