“Building our Future” – Conference to be held at United Nations on 21 March 2012

The first United Nations observed World Down Syndrome Day (WDSD) will be celebrated at the UN Headquarters in New York, USA, on 21 March 2012 (3/21), with the Conference “Building Our Future”.
Inclusive education, human rights, political participation, changing society attitudes, independent living, how to work with the media and research are some of the topics that will be discussed.

See below the current programme:

World Down Syndrome Day at the UN – 3/21 – “Building Our Future” Conference Room 2 – United Nations Headquarters – New York, USA – 10.00 to 14:30

10.00 to 10:30 – Opening
Welcome and Introductions Penny Robertson OAM, Chair of Board, Down Syndrome International (DSi)
UN Secretary General Ban-Ki Moon – Message on WDSD (to be confirmed)

Head of Brazilian and Polish Missions
Co-sponsor Organisations
10:30 to 11.00 – UN Convention on the Rights of Persons with Disabilities (CRPD) and Inclusion – The Importance of Global Coordination Effort to Socialize the Convention
Rosangela Berman-Bieler – Senior Adviser on Children with Disabilities, UNICEF
Penny Robertson – Promoting inclusion in schools in Indonesia
Shona Robertson – Australia – Self-advocate – on her education experience
Beatriz Paiva – Brazil – Self-advocate – Carpe Diem Association – Co-author of book on communication accessibility

11.00 to 11:30 – Human Rights and Political Participation of Self-Advocates
Daniela Bas – Director of Division for Social Policy and Development (DESA), UN
Maria Alejandra Villanueva Contreras- Peru – Self-advocate – Fighting for her right to vote
David Egan – USA – Self-advocate – Lobbying for his rights at the US Congress
Ester Nadal Tarrago – Spain – Self-advocate who participated on book on the Convention

11:30 to 12:30 – Changing Society Attitudes – From Neglect and Institutionalization to Protagonist and Living in the Community
Rose Mordi – Nigeria – President of Down Syndrome Foundation Nigeria
K.S. Sripathi – India – State Chief Information Commissioner, Tamil Nadu Government, Down Syndrome Association of Tamil Nadu
Jason Kingsley – USA – Self-advocate, Co-author of book “Count Us In: Growing Up With Down Syndrome”
Emily Perl Kingsley – USA – Mother, writer, activist, author of “Welcome to Holland”
Tom Forester – USA – Director of Residential Services – Association for Children with Down Syndrome (ACDS), Long Island, NY
Michael Brennan – USA – ACDS Group Home Resident

12:30 to 13:00 – The Power of Media – A Guide to Work with the Media to Promote Inclusion
Michelle Whitten – USA – Global Down Syndrome Foundation – How to get media’s attention in a positive, constructive way
Patricia Almeida – Brazil – MetaSocial Institute – Brazil’s experience with WDSD and inclusive actions in collaboration with the Media
Tatiana Heiderich – Brazil/Holland – Self-advocate on her experience as a TV reporter

13:00 to 14:00 – Care, Treatment and Research – What’s new on the DS front
Dr. Jose Florez – Director, Mass General Hospital Down Syndrome Clinic; Director, NDSC; Clinical Advisory Board, NDSS
Dr. Brian Chicoine – Medical Director, Adult Down Syndrome Center, Lutheran General Hospital; Scientific Advisory Research Group, DSi
Dr. Dennis McGuire – Director of Psychosocial Services, Adult Down Syndrome Center, Lutheran General Hospital; Scientific Advisory Research Group, DSi
Dr. Edward McCabe – Executive Director, Linda Crnic Institute for Down Syndrome
Margie Doyle – Down Syndrome Research and Treatment Foundation (DSRTF) – Latest on research and how to help studies move faster

14:00h to 14.30 – Launch:
1) DSi 2012 WDSD Global Video Event
2) New WDSD Website
3) DSi UN Convention Global Outreach Programme
4) Book “Change the way you speak and I will change my way of
understanding”- By Carolina Yuki Fijihira, Ana Beatriz Pierre Paiva, Beatriz Ananias Giordano, Carolina de Vecchio Maia, Carolina Reis Costa Golebski, Claudio Aleoni Arruda, Thiago Rodrigues, from Carpe Diem Association, Brazil.
5) Book “The United Nations International Convention on the Rights of Persons with Disabilities commented by its Protagonists” – By Down España http://www.inclusion-international.org/wp-content/uploads/Guia-Convencin…

14:30 – Closing

The event is sponsored by the Missions of Brazil and Poland to the UN and organised by Down Syndrome International with the collaboration of the Brazilian Federation of Associations of Down Syndrome (FBASD), Down España, Down Syndrome Research and Treatment Foundation (DSRTF), National Down Syndrome Congress (NDSC), National Down Syndrome Society (NDSS), Special Olympics and the UN Secretariat for the Convention on the Rights of Persons with Disabilities.

Registration
Participants from all around the world are welcome, especially those with Down syndrome.
There is no cost for registration. Confirmation to attend the event can be made by the email to undsconference@gmail.com.
Please inform name, email, age, nationality, relation to Down syndrome (self, parent, relative, professional, teacher, student, friend or other-specify), document number (passport, driver’s license, student´s ID), whether you have a disability and what kind and if you need a disability-related accommodation or service.
Only participants with their names on the list and an ID will be allowed in the building. Space is limited.

About Down syndrome
Down syndrome is a naturally occurring chromosomal arrangement that has always been a part of the human condition, being universally present across racial, gender or socio-economic lines, and affecting approximately 1 in 800 live births, although there is considerable variation worldwide. Down syndrome usually causes varying degrees of intellectual and physical disability and associated medical issues.

About World Down Syndrome Day
World Down Syndrome Day (WDSD) was established by Down Syndrome International in 2006 and has been observed in over 60 countries worldwide to date. It is held on 21 March (21/3) to signify the uniqueness of the triplication (trisomy) of chromosome 21 which causes the genetic condition.
The aim of the day is to raise awareness and understanding about Down syndrome, and to promote the inherent rights of persons with Down syndrome to enjoy full and dignified lives and be active and valuable participants in their communities and society.

A resolution to designate 21/3 as “World Down Syndrome Day”, to be observed every year beginning in 2012, was adopted by consensus by the United Nations General Assembly in December 2011. The resolution was proposed and promoted by Brazil, and co-sponsored by 78 UN Member States. From 2012 onwards, the date will be celebrated by all 192 UN countries. To learn more about the resolution process at the UN, visit http://www.ds-int.org/news/1769.

For further information on World Down Syndrome Day (WDSD)
please visit the DSi website
www.ds-int.org or
the WDSD website www.worlddownsyndromeday.org

Press Contact:
Andrew Boys –
Tel: 0044 (0)20 8614 5124
Mob: 0044 (0)7810 153294
Email: contact@ds-int.org
Down Syndrome International -
Langdon Down Centre,
2A Langdon Park, Teddington,
Middlesex, United Kingdom, TW11 9PS.
Website: www.ds-int.org

Editors Notes:

•Down Syndrome International (DSi) is a UK based international charity, comprising a membership of individuals and organisations from all over the world, committed to ensuring quality of life and human rights for all people with Down syndrome. Our members include people with Down syndrome, parents, family members and friends, carers, professionals, practitioners, researchers, organisations and people who are interested in Down syndrome.

•World Down Syndrome Day is a global awareness day observed on 21 March each year. This date (21/3) represents the 3 copies of chromosome 21, which is unique to people with Down syndrome, and people and organisations worldwide celebrate on this day in a variety of different ways.

•Down syndrome is a life-long genetic condition from conception. All people with Down syndrome will have some degree of learning disability but many will go on to lead full and semi-independent lives.

•There is estimated to be up to 7 million people who have Down syndrome living worldwide.
Please refer to attached Guidance Notes regarding use of terminology.

Regards
Andrew Boys
Director
Down Syndrome International

DSFN celebrates World Down Syndrome Day (March 21st)

Press Release 6th March 2012
DSFN celebrates World Down Syndrome Day (March 21st)

The Down Syndrome Foundation Nigeria (DSFN), a registered charity established within the country to cater for people with Down Syndrome, announces the World Down Syndrome Day (WDSD) which comes up on March 21st 2012 will be celebrated in Nigeria just as it is being held all over the world.
What makes this year’s event very unique is that this is the first time the WDSD will be celebrated officially around the world after having been officially recognized by the United Nations (UN).

The first United Nations observed World Down Syndrome Day (WDSD) will be celebrated at the UN Headquarters in New York, USA, on 21 March 2012, with the Conference “Building Our Future”.
The World Down Syndrome Day (WDSD) is usually celebrated on 21 March with Down syndrome organizations throughout the world organizing and participating in events to raise public awareness of Down syndrome.
According to the National President of the Foundation, Mrs. Rose Mordi, special activities have been lined up globally and locally to mark the day specially dedicated to people with Down syndrome worldwide and the foundation happens to be participating in all the activities including the special conference which will be held at the UN Headquarters in New York, with the UN Secretary General, Mr. Ban Ki Moon presiding.

The Down Syndrome Foundation is planning to make the World Down Syndrome Day (WDSD) the best celebration ever as it will be the first officially recognized WDSD in history as recognized by the United Nations. Already, the celebration would commence on the 7th of March with the celebration of the annual Inter-House sporting activities which will showcase the strength of the members in sports. There would be different kinds of sporting activities like sprints, long jump, egg racing and other fun sports.
The next activity that would follow the inter-house sports is a highly explosive comedy show entitled Comedy Infusion II for Children with Down syndrome coming up on Sunday, March 18th, 2012 at the Golden Tulip Hotel, Amuwo Odofin, Lagos State.

The show which is in its second season is being put together by Meljesten PR and Events in conjunction with E-Smith Events will feature a selection of star-studded comedians and celebrities like Alibaba, Teju Babaface, Basket Mouth, Emeka Smith, Yaw, Julius Agwu, Gbenga Adeyinka, AY, Gordons, Klint Da Drunk and Korede Bello. Others include Seyi Law,Elenu, Shakara and with music entertainment coming from KC Brown, Buzopat, Solid Star, and Ara.

The Special Guest of Honour is Mr. Tonye Cole of Sahara Group while Her Excellency, Mrs. Joke Adefulurie, the Deputy Governor of Lagos State is the Mother of the Day. Tickets for the show are on sales on major eateries across Lagos State and also at the DSFN Resource centre located at 43, Adegoke Street, Surulere Lagos. On March 21st, the foundation will be represented at the official WDSD that will be observed at the UN Headquarters, New York. According to Mordi, DSFN have been listed to deliver a paper at the celebration.
“It is my pleasure to inform you that DSFN will be part of the celebration in the first official celebration of March 21st as the WDSD at the UN and series of lectures are to be delivered by several organizations for people with Down syndrome across the world. I will be one of the persons giving a speech come March 21 this year,” she announced.

The National President will be speaking alongside Penny Robertson OAM, Chair of Board, Down Syndrome International (DSi) (UK), Rosangela Berman-Bieler – Senior Adviser on Children with Disabilities, UNICEF, Penny Robertson from Indonesia, Australian – Self-advocate, Shona Robertson and Beatriz Paiva from Brazil among many others.

Mordi will deliver on the topic, Changing Society Attitudes – From Neglect and Institutionalization to Protagonist and Living in the Community, while the Foundation plans a picnic for children with Down syndrome, families and friends and a courtesy visit to dignitaries to raise the awareness of the rights of people with DS.

The foundation wishes to say that the goal of the WDSD is to raise awareness for the Rights and Dignity of People with Down syndrome and to celebrate people with DS and help them actualize their potentials and live a fulfilled life.

Down Syndrome Foundation Nigeria celebrates Nelson Mandela International Day

The Down Syndrome Foundation Nigeria (DSFN) today joined the whole world in celebrating Nelson Mandela 93rd birthday as well as marked the Nelson Mandela International Day in recognition of the United Nations General Assembly that established July 18th as Mandela Day by its resolution A/RES/64/13.

The Nelson Mandela International Day recognizing the contributions of the great son of Africa to democracy, racial justice, reconciliation, and his dedication to the services of humanity.

At the Adegoke Street, Surulere, Lagos State Resource office of the foundation, some staff of the Information Centre of the United Nations (UN) Nigeria visited to join in this year’s campaign and call by the Nelson Mandela Foundation for individuals around the world to donate 67 minutes of their time to changing the world for the better.

According to the team leader, Mrs. Araba Olajumoke, the objective of this year’s celebration of the Mandela Day was to affect humanity.

“The overarching objective is to inspire individuals to take action and in doing so, empower entire communities and build a global movement for good,” she said.
The campaign slogan for this year’s celebration is; Take Action, Inspire Change: Make Every Day a Mandela Day.

While receiving the UN delegation to the foundation, the National President, Mrs. Rose Mordi , said that the children and staff of the foundation were thrilled when they were informed that they would have visitors from the UN coming to celebrate the birthday of Nelson Mandela with them.

“Every African and every right thinking person knows the sacrifice that Madiba Nelson Mandela made for his country and for reconciliation and we are happy to be part of this great celebration. What is happening here today represents the kind of person we are celebrating is; a man that takes every human being to be equally loves and respected. We wish him the best of health as he celebrates his 93rd birthday. We are the Down Syndrome Foundation Nigeria will keep praying for him,” she said.

They UN group were led through a tour of the facility by the foundation’s administrator, Mrs. Patricia Peters after which the slide projector presentation about the life, struggle and achievement of Nelson Mandela was shown.
Also, a biographical movie entitled Invictus about the life of Nelson Mandela was shown to the children.

Araba later led the group to do some cleaning of the facility and also the hostel as well as cooked for the children who were evidently happy to be included in the celebration. All the children and members of staff later sang a happy birthday song to Nelson Mandela and wished him many more years to affect humanity the way he has been doing.

Down Syndrome Foundation Nigeria Wins International Award on World Down Syndrome Day.

Down Syndrome Foundation Nigeria Wins International Award on World Down Syndrome Day.

By Ahaoma kanu

The Down Syndrome Foundation Nigeria (DSFN), the charity that takes care of people with Down Syndrome in Nigeria and the west coast joins all other Down Syndrome organizations all over the world in celebration of the World Down Syndrome Day (WDSD) which is officially marked on March 21st of every year.

The World Down Syndrome Day-WDSD is a global event supported by all Down syndrome groups worldwide and we at DSFN use this period to focus our efforts in Advocacy, Awareness and interactive and educative partnerships to overcome the prejudices of people living with Down syndrome.

The foundation had series of activities to commemorate the event which included an inter-house sports, a comedy show entitled Comedy Infusion which was celebrated yesterday at The Incubator, Ligali Ayorinde Street, Victoria Island, opposite RCCG Church (City of David) Lagos. The event witnessed top comedians like Emeka Smeth, Teju Babyface, Klint Da Drunk, Funky Mallam, AY, Seyi Law, Elenu and Shakara. Music entertainment came from Ice Prince, Buzopat, W4, Ray 9 and Ara. The event was packaged by Meljenstin PR & Events, E-Smith and Down Syndrome Foundation Nigeria. An Open House event which will feature several activities will cap the celebration.

Also, the foundation is one of the recipients of the 2011 World Down Syndrome Day Awards courtesy of the Down Syndrome International (DSi) based in the United Kingdom but comprising a membership of individuals and organisations from all over the World, committed to ensuring quality of life and human rights for all people with Down syndrome .

The announcement was made today and the foundation won in the award in the Outstanding Professional Categories for organisations that have affected people with Down Syndrome in the world.

Speaking delightedly about the award, the National President of the foundation, Mrs. Rose Mordi said the foundation was grateful and really encouraged by the award.

“Honestly, I must say that we are surprised by this honour and we dedicate the award to God Almighty for given us the strength to be doing what we are doing and also to our members, volunteers and well wishers,” she said.

The foundation was the only African country to receive the award this year which is the second edition of the awards.

According to the Mr. Andrew Boys, Director of DSI, a formal presentation formal presentation of World Down Syndrome Day Awards for the years 2010-2012 will take place at the 11th World Down Syndrome Congress (WDSC) in Cape Town, South Africa from 15-17 August 2012.

Below is the Press Release published by DSi and can be viewed at the link http://www.ds-int.org/news/1666

PRESS RELEASE

For immediate release on Monday 21 March 2011

DOWN SYNDROME INTERNATIONAL ANNOUNCES RECIPIENTS OF 2011 WORLD DOWN SYNDROME DAY AWARDS

On Monday 21 March 2011, World Down Syndrome Day, Down Syndrome International (DSi) is delighted to announce the recipients of the 2011 World Down Syndrome Day Awards.

2011 is the second year of the World Down Syndrome Day Awards, presented to individuals or organisations whose voluntary, professional or scientific activities have strengthened and enriched the lives of people with Down syndrome, or contributed to scientific advancement related to Down syndrome.

This year’s recipients are as follows:

Voluntary and Professional Awards

4 individuals with Down syndrome receive awards for outstanding self-advocacy:

Ty Belnap (Australia) – Record breaking swimmer, surf lifeguard and stage and movie actor.

Mia Farah (Lebanon) – Self-advocate and international disability rights campaigner.

Malgorzata Jablonska (Poland) – Stage and movie actress, performing in many European countries.

Sujeet Desai (USA) – Accomplished musician and self-advocate with worldwide reputation.

3 individuals receive awards for outstanding professional activities:

Dr Branka Butorac (Croatia) – Headmaster of Down Syndrom Centar Pula, Croatia.

Driton Bajraktari (Kosovo) – Co-Founder and Executive Director of Down Syndrome Kosova, Kosovo.

Pauline L`vovna Zhiyanova (Russia) – Special Education Teacher, Downside Up, Russia.

4 organisations receive awards for outstanding professional activities:

Ikatan Sindroma Down Indonesia (ISDI) (Indonesia) – Down syndrome support and advocacy group.

Yaldei Tismonet Down (YATED) (Israel) – Down syndrome parent support organisation.

Down Syndrome Foundation Nigeria (Nigeria) – Centre for children and adults with Down syndrome.

Robert Owen Communities (UK) – Charity supporting over 350 adults with learning disabilities.

2 individuals receive awards for outstanding volunteer activities:

Agnieszka and Zofia Aleksandra Tucholska (Poland) – Young sisters with volunteering experience assisting people with Down syndrome and other learning disabilities.

1 individual receives an award for an outstanding contribution to raising awareness of Down syndrome:

Casper Lja (Canada) – 23 year old man who cycled 7,444 kilometres across Canada to raise awareness and money for Down syndrome advocacy.

Scientific Awards

1 individual receives an award for outstanding contribution as a medical professional in the field of Down syndrome:

Dr S Suresh (India) – Co-Founder and Chief Medical Director, MediScan Systems, Chennai, India.

President’s Special Recognition Award

2 individuals receive special awards for lifetime achievement in Down syndrome advocacy:

Penny Robertson OAM (Australia) – Pioneer of Down syndrome advocacy in Australia, Founder of Australian International School, Indonesia and Co-Founder of Down Syndrome International.

Dr Balbir Singh PBM (Singapore) – Founding Chairman of Down Syndrome Association Singapore, pioneer of World Down Syndrome Day programme and Social Service and Disability sector advocate.

All recipients are invited to a formal presentation of World Down Syndrome Day Awards for the years 2010-2012 taking place at the 11th World Down Syndrome Congress (WDSC) in Cape Town, South Africa from 15-17 August 2012.

-END-

For further information on the recipients of the 2011 World Down Syndrome Day Awards or to learn more about World Down Syndrome Day (WDSD), please visit the DSi website www.ds-int.org or the WDSD website www.worlddownsyndromeday.org. For further information on the WDSC please visit the website www.wdsc2012.org.za.

–
AHAOMA KANU
MEDIA AND PUBLICITY COORDINATOR
DOWN SYNDROME FOUNDATION NIGERIA
43, ADEGOKE STREET
OFF MASHA ROAD, SURULERE
LAGOS STATE
NIGERIA
Email: a.kanu@dsanigeria.org
Website: www.dsanigeria.org
Tel:: +234-80-3748-7286

PRESS RELEASE : World Down Syndrome day March 2011

World Down Syndrome Day
Come Monday, March 21, 2011, the Down Syndrome Foundation Nigeria DSFN, joins the world to celebrate the World Down Syndrome Day-WDSD. This is a global event supported by all Down syndrome groups worldwide and we at DSFN use this period to focus our efforts in Advocacy, Awareness and interactive and educative partnerships to overcome the prejudices of people living with Down syndrome.

The Down Syndrome International (DSI) adopted March 21^st to signify the uniqueness of Down syndrome in the triplication (trisomy) of the 21^st chromosome and is used synonymously with Down syndrome. The inaugural WDSD was held on 21 March 2006 in Singapore.

Our activities for this year’s WDSD events include an Inter House Sports Competition, Comedy Infusion and an Open House on March 21, 2011.

The INTER HOUSE SPORTS competition is slated for Wednesday, March 9, 2011 at the Sam Shonibare Community Centre, Off Ajao Road, Surulere, Lagos under the distinguished Chairmanship of Mr. Tonye Cole, Managing Director, Sahara Oil and Gas Limited. The Special Guest is the Lagos State Commissioner for Women and Poverty Alleviation, Mrs. Joke Orelope-Adefulire. The Father of the Day is Mr. William Pope, Principal, Grange School, while Mrs. Stella Nwankalor is the Mother of the day.  The event starts at noon.

The COMEDY INFUSION comes up on Sunday, March 20^th, 2011 at The Incubator, Ligali Ayorinde Street, Victoria Island, opposite RCCG Church (City of David) Lagos.

Comedian Seyi Law, Mrs Patrick Chibuzor CEO Meljenstin PR& Events,Mrs. Rose Mordi, National President DSFN, Comedian Funky Mallam &Emeka Smith.JPG

Participating comedians include Basketmouth, Julius Agwu, Gbenga Adeyinka d 1^st, Funky Mallam, AY, Gordons, Klint Da Drunk and Teju Babyface. Others are Seyi Law, Emeka Smith, CD, John, Elenu, Shakara. Music entertainment coming from Ice Prince, Buzopat, W4, Ray 9, Obiwon, Whiz Kid, MI, Liza and Jay One.

Press Conference on the 8 March 2011 at DSFN HQ

Guest appearance by Ali Baba and Master of Ceremony is Desmond Elliot.

Her Excellency, Mrs. Sarah Sosan, Deputy-Governor of Lagos State is the Special Guest of Honour and Mother of the Day is First Lady, Lagos State, Mrs. Abimbola Fashola.

The event starts at 5 pm. Tickets –Regular- N1, 500, VIP- N5,000 and V-VIP- N10,000- are available in all Tastee Fried Chicken outlets  Festac, V/I, Opebi, Ikoyi, Agege, Surulere, Marina, Omole, Ikorodu.

There are tables of 10 – N200, 000 and a table of 5 – N100, 000.

This event is been packaged by Meljenstin PR & Events, E-Smith and Down Syndrome Foundation Nigeria.

The WDSD- OPEN HOUSE is on Monday, March 21^st, 2011 at the DSFN Resource Centre at 43, Adegoke Street Surulere. Time is 11 am prompt. The open house will feature several activities.

Let’s Show Them LOVE!

Down Syndrome Foundation Nigeria (DSFN) Awareness Week Seminar

VENUE: GRANGE SCHOOL
HAROLD SHODIPO CRESCENT
IKEJA G.R.A LAGOS NIGERIA
THEME: “JUST ONE CHROMOSOME…GIVE ME A CHANCE”

SPEAKERS: DR. REUBEN ABATI
CHAIRMAN, EDITORIAL BOARD
THE GUARDIAN NEWSPAPERS

DR. DAVID MULLIGAN
ENTERPRISE DEVELOPMENT ADVISER
SMEDAN ABUJA

PROF. JOANNE UMOLU
EXECUTIVE DIRECTOR
OPEN DOORS FOR SPECIAL LEARNERS
JOS NIGERIA

PENNY GREEN
DIRECTOR
DOWN’S HEART GROUP U.K

DATE: 5TH OCTOBER 2010

TIME: 10 AM PROMPT

ADMISSION: FREE

Down Syndrome Foundation Nigeria Awareness Week 2010 begins 29th September – 10th October

We wish to formally invite your organization and request for your sponsorship/partnership of the Awareness Week-2010,” which commences from Wednesday 29th September through October 10th 2010.

The Awareness Week is part of a global event supported by all Down syndrome groups worldwide. We at Down Syndrome Foundation Nigeria (DSFN), use this period to focus our efforts in Advocacy, Awareness and Fund raising.

The theme for this year’s programme is “Just one chromosome…Give me a chance.”

The key events of the week are…

Our aim is to raise as much funds as possible towards the target of N25m (Twenty-five million Naira), which would commence the development of a properly equipped educational establishment resource centre, provide transport and working capital. We also need to urgently raise N10m (Ten million Naira) for the next set of 8 remaining children and babies who require life saving heart and eye surgery in India.

Your specific support/sponsorship is required in the following areas…

* Sponsoring/Branding Tee Shirts and Fez caps for the charity walk on Saturday, October 2, 2010
* Branding the Seminar materials and venue scheduled for Tuesday, October 5, 2010
* Paying for several tables for the fund raising dinner and awards evening on Thursday, October 7, 2010 (a table of 10 costs N140,000 –individual tickets costs N15,000 each)
* Further sponsorship details are hereby attached

As this is the first year as a Foundation, partnering with an eminent corporate organization like yours, we are confident that this year’s edition will be the most successful ever.

Mrs Rose Mordi

National President.

Why the Down Syndrome Foundation is Being Launched

Down Syndrome Foundation Nigeria – Invitation to the commissioning of our new resource c

DSAN Celebrates World Down Syndrome Day

The Down Syndrome Association of Nigeria (DSAN), a registered charity and the only organization established within the country and the West African sub-region to cater for people with Down Syndrome, announces the World Down Syndrome Day which comes up on March 21st 2010 will be celebrated in Nigeria just as it is being held all over the world.

World Down Syndrome Day (WDSD) is usually celebrated on 21 March with Down syndrome organizations throughout the world organizing and participating in events to raise public awareness of Down syndrome.

The date which was selected by Down Syndrome International (DSI) to signify the uniqueness of Down syndrome in the triplication (Trisomy) of the 21st chromosome and is used synonymously with Down syndrome.

According to the National President of the Association’, Mrs. Rose Mordi, special activities has been lined up for the day and this will be flagged off by a special thanksgiving ceremony at Redeemed Christian Church of God (Jubilee Christian Centre, 15 William Street, Aguda, Surulere,Lagos) after  which an awareness rally will commence from the Down Syndrome Association of Nigeria Headquarters situated at 43 Adegoke Street, Surulere, Lagos State.

The Awareness rally will proceed to the Lagos State Government House where the wife of the State Governor of Lagos State, Her Excellency, Mrs. Abimbola Fashola will host people with Down Syndrome to an evening of discussions and   to create awareness of the condition in the country.

The association will also use the celebration to inform of the programs it plans to hold tentatively over the next few months in order to create awareness as well as advocate for people with Down Syndrome in Nigeria .

Some of the events include the commissioning of the Down Syndrome Foundation of Nigeria which will take place on the 27th of May 2010; a one day special musical concert that would feature notable artistes in the country billed for the 3rd of July 2010 while the Annual Down Syndrome Awareness Week will commence on the 2nd of October with a Charity Walk; A seminar on the 6th of October while the Awards Dinner evening will take place on the 8th of October 2010.  The Annual Family Funfair which brings families, friends and partners of people with DS is expected to be held on the 9th of October 2010.

Also, there would be introduction of so many others events our PR firm, Meljenstin Public Relations and events Consultants will come up with this year.

The National President wishes to inform our numerous partners and support groups that through their support, the association has been able to relocate from the former resource centre located at 109 Ogunlana Drive , Surulere to 43 Adegoke Street also in the same vicinity, where renovation works is still going on. The association wishes to use this opportunity to appeal to corporate organizations, religious bodies and individuals to project.

The association also wishes to inform the general public especially those with DS children of the introduction of boarding facilities in the educational centre operated by the association and urges families to enlist their children or wards to be adequately taken care of by the specialized staff at the centre.

The association would also like to announce that it would be honoured in the Special Recognition Category of the National Daily Awards as the best Non Governmental Organization for the year 2009 by the National Daily Newspapers.  In a letter dated March 8, 2010, the Managing Director and Editor-In-Chief of the National Daily Newspaper, Mr. Sylvester Egbodaghe noted that the association was being honoured for their “unquantifiable contributions towards those whom ordinarily members of the society would not want to have anything to do with.”“You stuck out your neck and embraced the unembraceable, showing them love and extra ordinary care in the midst of a selfish and careless world. You gave hope by giving off your own humanity,” the letter read.

The Award ceremony   would hold   26th of March, 2010 at the Lagoon Restaurant, Victoria Island, Lagos and is to be chaired by the former Secretary-General of the Commonwealth, Chief Emeka Anyaoku while Prof Jerry Gana, former Minister of Information is expected to give a keynote lecture.

The association wishes to dedicate the award to all its partners.

Visit our website at www.dsanigeria.org for more information or call our Media and Publicity Department on 080-3748-7286: Email: ahaoma@dsanigeria.org

About The Down Syndrome Association of Nigeria

Who are we?

Down syndrome Association of Nigeria is a non-governmental, not-for-profit association of children with Down syndrome as well as their parents, caregivers, and other interested stakeholders.

History

Down syndrome association of Nigeria was formed (founded) on 4th of December, 2001 by a parent of a child with Down syndrome. Societal attitude toward parents of people with Down syndrome is totally negative in the Nigerian society. Society defines them by what they do not have rather than what they have; what they cannot do rather than what they can do; they are relegated, denigrated and stigmatised on the basis of some retrogressive myth and tradition They are abused physically and sexually with impunity and in extreme cases; even their right to life itself is denied them.

It is against this rather harrowing and ugly backdrop that Down Syndrome Association of Nigeria evolved with a vowed commitment to bridge the gap between children/adults with Down syndrome and the rest of the society through a support system that seeks ultimately to integrate them. This commitment is rooted in the firm belief that if given the necessary encouragement and enabling environment to grow like others, people with

Down syndrome can and do actualise their potentials and live a fulfilled life. In a vast country like Nigeria , as well as in the entire West African coast, with a combined population of well over 230 million, we are the known non-governmental organization working to provide leadership in all areas of concern as it relates to persons with Down syndrome. It should be noted that charity/volunteer work in our part of the world could be most challenging and frustrating, especially as there is very insignificant, if any, support (both morally/financially) from the Government and corporate concern

Mission Statement

Vision – Our vision is a world where all young people with Down syndrome are offered the opportunities that they need to achieve their individual potential. Mission – Our mission is to improve the opportunities offered to young people with Down syndrome. We do this by discovering their potential and by identifying how to support their personal development most effectively through scientific research. We then communicate evidence-based information and guidance through publishing, training and consultancy services to families and professionals worldwide. Through scientific research and global communication, we transform the lives of people with Down syndrome everywhere.

Our services

Educational

We give special educational Early Intervention Programme (E.I.P). This is meant to cater for each child’s immediate and unique learning needs and facilitate the child’s developmental milestone. However, before this is done, an assessment test is carried out on the child to diagnose his/her intellectual deficits and medical problems. Our in-house Educational psychologist and medical Doctors in the Down syndrome Association secretariat do this assessment at 109, Ogunlana Drive Surulere, Lagos . As soon as these educational and medical assessments have been done, the child’s medical needs will be ascertained and the modalities for treatment and therapy will be made known to the parents/guardian. Similarly, the result of the educational assessment will reveal the child’s strengths and weakness, and an individualized curriculum Programme is planned for the child; this Programme is unique in the sense that, it is tailored specifically towards the learning needs of each child as all children are not equal, each has his/her own learning needs.

The educational Programme curriculum covers the following areas

1) Literacy Development (Reading & Writing skills)

2) Numeracy skills (Numbers and Calculation)

3) Communication & Language (Speech development)

4) Social Development

5) Vocational skills

6) Perceptive skills

Social Services

Relocation Programme for street boys and girls with Down syndrome

Enlightenment/Interactive services on Down syndrome through media/work shop/seminars

Help line Telephone service and House-to-House emergency respite, Sensitisation and Advocacy/Pressure group to the government, legal services and memoranda to government officials involved with health and educational Programmes at local, state and federal levels.

Regular enlightenment and interactive service on Down syndrome through the media (print and electronic), workshops/seminars.

Through the above mediums Down syndrome Association of Nigeria give information to people about the condition-Down syndrome and the best management strategies. Since Down’s syndrome and learning disabilities is a societal problem as a result of the negative stigma associated with it, we educate and de-stigmatise the society from such negativism.

Sensitisation and advocacy/pressure group to the government including legal services and memoranda to government. The association paid one of such visits to the national assembly (senate). It has also visited the 1st lady of the Lagos State government. Several letters and memoranda are sent on a daily basis to various corporate organization government organs and well meaning personality giving them awareness about this condition Down syndrome and the need why parents who have these children should bring them out for proper care and education.

We also give telephone help-line service and house-to-house emergency respite for people with Down syndrome.

Rehabilitation Services

This department functions under the educational Programme of the Down syndrome Association. The following services are offered:

Training centre and resettlement support for people with Down syndrome

Resource centre which includes Toys and educational library

Mainstreaming and integration school Programme for people with Down syndrome.

Counselling Services

Parents of children/wards with Down syndrome, as well as siblings need a lot of counselling. The Down Syndrome Association of Nigeria has a host of professional counsellors who offer counselling services.

The following lines are for counselling:

234-1-8119718,08032285545 or email counselling@dsanigeria.org.

Referral Services

Down syndrome Association of Nigeria officials and members of the Board of Trustees meet regularly to review the activities of the association.During these meetings, all other committees meet to review Programme of the Association and assess the success and challenges of the various Programmes undertaken by the association during the year.

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